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17 Year Old Girl Is Dying. She Has Marfan Syndrome Any Hope Out There?

By admin Posted in: alternative medicine

She has seen just about every doctor traditional medicine can throw at her. Are there any alternative medical doctors, Naturopaths, Homeopaths, heck anyone at this point she’s dying!

  1. KateG Says

    Marfan syndrome patients can frequently live into their 60s. There’s new information released this year, which may not have made it to all practitioners. http://www.marfan.org/marfan/4265/2010-R…
    I would contact the Mayo Clinic or St. Jude’s Hospital for advice – they are both exceptional severe case treatment centers for disease and utilize a team approach, rather than individual practitioners. http://www.mayoclinic.org/marfan-syndrom…http://www.medicalnewstoday.com/articles…
    Alternative medicine does not really offer much for genetic type disorders of this nature. The disease doesn’t kill but it is symptoms of the disease – this really requires medical intervention. There are suggestions that diet helps, but I think we’re beyond that point with her condition more critical. But have a look at the ayurvedic treatment below – it is not designed for ‘saving’ as much as it is an intermediate treatment, but you may find helpful information – and there is a contact for the practitioner from the article.http://ezinearticles.com/?Marfan-Syndrom…

  2. Val Says

    Prayer. God’s word tells us that by Jesus’ stripes, we ARE healed.

  3. Anonymous Says

    Marfan syndrome is a genetic disorder. . One really doesn’t technically die of Marfan syndrome but from complications do malformed heart valves or a weakened aorta. These really are not conditions that can be treated by alternative medicine.

  4. Tink Says

    You be sure to keep the chiro’s, the quacks and the homeo and naturopaths from her….
    Make sure that she sees her cardiologist on a regular basis to have her aorta scanned, and to keep her on blood pressure/heart beat regulating medication as needed – make sure that she wears piece of medical alert jewelry to let emergency responders know what to look for in case she’s out shopping one day and she falls to the floor – because time will be of the essence, alright?http://www.google.com/#hl=en&&sa=X&ei=Bu…

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